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Thursday, January 20, 2011

Emma and Taylor

Here's a heartwrenching story:


I have received several emails asking for my address for the purpose of sending flannel for our traveling baby quilts, but today I received the first fabric in the mail.


It is in honor of conjoined twin girls. Emma and Taylor shared a heart. It's a beautiful metaphor, but the logistics of sharing a heart are quite a bit more complicated. This past August, at three years old, they underwent sugery to qualify them for heart transplants.


Neither one of them survived the surgery.


INCONSOLABLE!


This fabric was donated on behalf of the twins' mother, Mandy, by her sister-in-law, Sara.


Blue and purple were Emma and Taylor's favorite color.

This post goes out in memoriam to honor:

Emma and Taylor Bailey

Born: September 2o, 2006

Died: August 10, 2010

Thursday, January 13, 2011

Be the comfort you want to see in the world

Yesterday was Ella's funeral. I read her mother, Amy's words this morning and one line in particular struck me: 


Hearts that have been broken wide open need to be filled up with something else. 


How profound!


Maybe that's why it is so important to fill broken hearts with love and comfort and compassion, before they get filled up with bitterness, anger, and regret.  Broken hearts are so darn vulnerable like that.  


I was just made aware of this family who recently lost their 14-month-old son, Andrew. He died in his sleep of SIDS. It's a parent's worst nightmare! The thing we all secretly fret over and fear. Let us all go and give this family a hug! 


I bet my sister will make another "for keeps" baby blanket like the one she made for Amy.




She just asked me yesterday to let her know if there is anyone else who needs one. Making baby blankets is such a productive way to grieve the loss of a child, don't you think? Just another way to fill up a heart that's been split wide open. 


Hey, I just thought of a new motto! 


Be the comfort you want to see in the world. 


I'm surprised Gandhi didn't think of that. ;)


So, to summarize: If you have lost a child, or know of someone who has, please join hands with the rest of us to soften the blow for others who are experiencing the same loss. It can be an adult child, or a miscarriage, it mattereth not. It can even be a grandchild or a niece or nephew. If you loved a child that has shuffled off this mortal coil, I am asking you to donate a piece of flannel in his/her honor. In remembrance. In memoriam.


So how can you join hands with us? 


1. Send a piece of flannel fabric which represents the child of honor. It can be a yard, or several yards, or simply a 12x12 square. 


2. Include your child's name and birth date AND death date. (My sister says the death date is very important to her since her son died.) 


3. The flannel will be cut into quilt blocks and sewn together with love, and with other quilt blocks honoring other children who have finished their earthly journey. 


4. The child's name, birth date and death date will appear in the corner of his/her quilt block. 


5. The baby quilt(s) (hopefully we will make dozens) will begin their journey as magic traveling quilts. Each person who receives the quilt will keep it as long as they need, until they feel ready to part with it and until they find someone else whose heart has split open wide and needs a filler. They will then pass it on. And so on and so on and so on. 


6. A notebook, which my sister is at this very moment making, will accompany the quilt on it's magical journey. The notebook will be for writing letters, messages, quotes, or little love notes to the absent child. This will be cathartic for both the writer and the subsequent readers. 


7. If you would like to include a love note to your child to be inserted into the magic notebook before it is sent out to the first recipient, please send it to me along with your fabric, or email it to ctddiaries@gmail.com.  


And please raise your hand if you would like to help sew "for keeps" blankets, or help piece together the traveling magic baby quilts once we get rolling.


Let's get to work, peeps!


Tuesday, January 11, 2011

Amy and Ella (and the Sisterhood of the Traveling Magic Baby Quilt)

I've been taking my dog for walks around the duck pond a few miles from our house lately, and while I walk, I think. Sometimes I think about life and sometimes I think about the ducks, who swim along the waters edge, trailing me, as I make my way around. They honk, honk, honk at me, as if to say "I'm starving! Did you bring me anything to eat?"

Ever since I fell in love with my dog, Lulu, I have developed this soft spot for animals. I can't stand to think of them hungry or neglected. Maybe that, coupled with the fact that I too know what it feels like to be hungry and needy, makes me feel enormously sorry for them.

So, of course, I've started bringing them food.

It's one of the benefits of pain and sorrow . . . once you feel it, you don't want others to feel it. And when you see them feeling it, you can't help but reach out and try to soften the blow.

But how do you soften the blow? With soft words?--I'm so sorry--soft prayers?--God be with you as you sorrow--soft blankets? --May I offer you a place to bury your head and cry. A place we have stitched together with love and compassion. You are not alone in your suffering. We have been there. We have all been there.  

I don't know if it's possible to soften life's blows, all I know is that we have to try. 


I recently heard a story about a mother who loses her child. It's an old story. A mother loses a baby. She is not the only person in the world to lose a baby--I could name dozens off the top of my head, and that's just who I know personally. I suspect you could name dozens too, but no matter how many mothers lose their babies, each story will always be immediate and deeply personal. And above all, agonizing. My sister, Melanie lost a baby 12 years ago. His name was Matthew and he lived for 12 hours.


Her only son.



You could say that sometimes bad things happen, and draw little analogies about life's challenges, but it doesn't help when you're the one suffering. I'm going to draw little analogies anyway.

A few weeks ago my daughter filled the car up with Diesel gas. It felt like a catastrophe at the time, but out of all the stress and worry we found something we've been looking for for a long, long time--a decent mechanic who we can trust 100% and who makes house calls and who only charges half the price of other mechanics. And who, when we said, "Thank you for your help," he said, "Thank you for the work."  

And like last week when my hub lost the remote control . . . he was tearing the house apart, meanwhile my boys couldn't change the channel so guess what they were stuck watching? The 700 club with Pat Robertson. Seems like a bum deal for a 12-year-old boy, but you know what they said about it?

"I'm kinda glad dad lost the remote because we got to watch all these miracles of Jesus Christ."

There's a moral here. There's a definite moral here. When bad things happen we often find what we've been looking for, and we get to watch the miracles of Jesus Christ.



God blesses the broken road that leads us back to him.

Meanwhile, the broken road smarts something fierce at times, and we need to try to soften those blows.

So I told my sister about Amy and the first thing she said was, "I want to make her a quilt!" She already had a lot of material because she's been collecting flannel for a while now, hoping for an opportunity to bring comfort to those who are going through the same loss she did.






Below is the fabric she chose to make the blanket for Amy. She chose white, which represents purity and the heavenly place where Ella now resides.


This is the finished product, which I mailed off to Amy this morning.



My sister and I decided that we would send Amy a small receiving blanket--the one pictured above--that she could keep forever.  Something just for her.

But we are also going to make a Magic Baby Quilt, which, when completed, we will send to Amy to kick off our Sisterhood of the Traveling Magic Baby Quilt project.  She will keep the quilt as long as she needs to, until she finds the next recipient--someone going through the same loss--and then she will pass the Magic Baby Quilt along.

And so on and so on and so on.

The magic will be grow stronger every time a mother receives the blanket and passes it on.

Along with the Magic Baby Quilt, there will be a Magic Baby Book. We will call it something like Letters to Heaven. Each mother who receives the notebook will write the name of her child in the book, along with a letter to her child. After a while, the book will be filled with letters to Heaven, which will hopefully be cathartic and bring comfort to many mourning mothers.

Questions?

How will the quilt be made? What will it look like? I was just getting to that.

The quilt will be made up of flannel fabric sent in by you. If you've lost a baby, or even an adult child, I am asking for you to send me flannel fabric--as much or as little as you like--which represents your child, along with your child's full name and birth date. We will cut the fabric into quilt blocks in honor of your child. We will then print your child's name and birth date onto clear iron-on decals and iron it into the corner of their quilt block(s).

I am thinking big. I want a lot of material so we can get a lot of baby quilts circulating.

I'm soliciting material from people I know who have lost a child, but if  you've lost a child or know someone who has, please spread the word and join our efforts.

If you would like to include a letter to your child before the magic book is delivered to Amy, please email the letter to me at ctddiaries@gmail.com.  You can also send the letters snail mail. Email me for my address.

Look to it, peeps!


P.s. To keep updated on Amy's story, you can find her on my sidebar at My Infernal Journal.


Saturday, December 18, 2010

Dollars and blankets and quilts, oh MY!

Look what my boys did today:



They wrote a note to Matthew Blanchard on their own hand made cards and slipped him $1. Even Lulu did it, cept she slipped him a $5.

Even my twin's friend, who was here at the time, pulled a $1 out of his pocket and said, "Can I do it too?"



How sweet it was.

And then I sent him a magic blanket.



So excited. Just can't hide it.


You can still join the dollar drive and send $1 to Matthew at 8444 Brody Marsh Ave/Las Vegas, Nevada/89143. Just think, if 1,000 people send a dollar, Matthew will have smiled 1,ooo times. And I've heard somewhere that 1,ooo smiles are as powerful as pixie dust.



Click here if you want to find out more about Matthew.



If you read my post yesterday on my CTD Diaries, you'll also know that I made and delivered three more magic blankets to three little boys who have a very sick daddy. You can read all about it and see photographic evidence here.




And you can read about the sick daddy here.



If you are interested in banging out some magic blankets yourself, let me just say it's SOOO dang easy. All you need is 1 yard of fleece, preferably no-pill because it's so forgiving, and 1/4 yard of a coordinating solid color to tie up the loose ends.



Lay the fleece out flat and on both ends cut strips--1 inch wide and 5 inches long--all the way across each end of the blanket.



Next cut 1 inch wide, 5 inch long strips out of the solid coordinating color.






Tie a solid strip around each strip (aka loose end) on the blanket.



Viola! You're done!


And finally, guess what? Kritta's done it again. She made another Magic Quilt with all the original fabric contributed by the people. And for the people. And of the people.

Ain't it gorgeous!? Mahalo, Kritta.


I'll be back to expound very soon, so don't touch that dial.

Tuesday, December 7, 2010

Magical Money for Matthew

I need to spew forth a Magic Quilt update before I explode into a thousand tiny pieces. So many, many things to share, which I have neglected to share because I've been pounding the pavement trying to win myself a job.


Win or lose, this job race helped refuel my Magic Quilt fire. Plus I've made a few new friends and reconnected with a few old friends who have turned out to be Magic Quilt muses.


One of them is Dana. I only recently met her but she's been a huge supporter of my SAM-e Good Mood Blogger gig efforts and organized a voting tree with 60 of her most amazing friends.


Turns out she also makes fleece quilts. For friends. In need. (That's probably why she has so many amazing friends.) She has made 45 quilts within the last two years.



Her son made 100 fleece lap blankets for his Eagle project and donated them to the Huntsman Cancer Institute. (Apples don't fall far from their trees.)



(Hmmm . . . my son needs a great idea for his Eagle project too . . .)


Dana got her inspiration for the fleece blankets when her own world was tipped by a medical condition.


After years of medical challenges her husband was diagnosed with Amyloidosis. It's not cancer, but he had to go through Chemotherapy in 2008, plus undergo a stem cell transplant. While in the hospital Dana was given a little fleece blanket, which she and her husband kept on their laps for a month as they went through one of the most difficult challenges of their lives.


Since then Dana has been spreading comfort and cheer to friends in need in the form of what I like to call magic fleece quilts. The quilts are a little different than the blankets. They are twice the size of the blankets and have two layers of fleece, plus batting.


I went to her house last week to go shopping for fleece and learn how to make the quilts and guess what? She surprised me with a quilt of my very own. Me!

And guess what else? My fleece quilt has a twin.


These hands belong to Dana's friend and neighbor who is just like me. A mom. A wife. A daughter. A friend. The only difference is she has a brain tumor and she is almost done with her mission here on earth.


I've always wanted a twin and am deeply honored to share her magic fleece quilt. I will do my best to live up to the responsibility I feel to create a place of refuge and bring comfort to those who are suffering, sad and scared.


And GOSH DARNIT, there are too too many.


We have a lot of work to do.


So Dana took me shopping for fleece at Joann's Fabric. We filled two carts.


I've always said that addiction is BAD, unless you're addicted to oatmeal or IKEA furniture, but fleece is SUPER addicting. If you HAVE to get addicted to something, fleece is a good choice.


We picked out this fabric for a little boy named Matthew Blanchard.

He loves sports, but he can't play them anymore because he contracted a virus which led to chronic Lymphocytic Myocarditis.


Don't you hate big words that make you sick? It's just wrong. And it's just wrong that a 12-year-old boy can't play sports. I have two 12-year-old boys who love sports so I know what I'm talking about.


DeNae Handy, over at My Real Life was Backordered created a foundation for Matthew because not only can big words make you sick, they can make you poor too.


If you click on this button, you can grab a button of your own and post it on your blog. And so on and so on and so on. Plus you can read all about Matthew and make a donation on his behalf. (Don't tell my husband, but I made one when I only had $75 in my bank account.)


Photobucket


Dana gave me another good idea--something she did a few years ago for a friend who's little boy, Spencer got cancer. Yes, she made him a magic fleece quilt . . .



but she also started a dollar drive for him--she told all of her friends to slip $1 into an envelope and send it to Spencer.


Imagine a young, sick boy getting all of these letters in the mail.


And then imagine him opening each envelope and finding a $1 bill. It would be just like Harry Potter. (I bet that's where J.K. Rowlings got the idea.)


They would be like magic dollars.


I was thinking we could do that for Matthew.


It would be like magical money. For Matthew. I bet that would really brighten his Christmas season.


Okay, so you know how you're busy stuffing envelopes with Christmas cards right now? Would you mind adding Matthew Blanchard to your list? It will only take a sec to slip a $1 bill into it.


And tell all of your friends, okay.

His address is:

Matthew Blanchard
8444 Brody Marsh Ave.
Las Vegas, NV 89143




>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

By the way, Spencer is completely cancer free now. He's been cured!


Just sayin'.

Sunday, October 10, 2010

A moment of silence, and the 2nd magic quilt

Sometimes I think the most magical thing about The Magic Quilt are the relationships forged through the suffering and the compassion. The reaching in and the reaching out. I feel so thankful to be making new magic connections on a regular basis, and it only strenghtens my resolve to reach further and dig deeper. One thing I've learned from this is that EVERYONE has a story. And everyone needs a story. Please share yours and help us heal the world, one quilt at at time.


When I first started this project I wanted the magic to save people. Make them all better. Now I see that people don't need to be saved. They need to be comforted. We cannot decide who lives or dies, but we can decide to lend a hand in carrying the burdens and easing the suffering of those who live and die.


The magic quilt has exceeded my expectations by every stretch of my imagination. I never dreamed it would come to mean so much to so many so quickly. If you're new to this blog and don't know the story of Stan and Lila, this post and this post will help you understand them better.


I am deeply honored that I was allowed to be a small part of their journey. MAHALO!





Allow me to share an email I received after Stan's passing from a girl named Corinne, who knows Stan and Lila.

.................................................................................



I need you to know how much that quilt meant to Lila and Stan. When I first arrived at their home, Stan had passed about an hour earlier. The quilt was still on him, then, and was on him until the funeral home came and my husband and Tom helped them carry him to the car. Lila showed me different parts of it, told the stories and showed me, in quiet whispers, the names that had been sewn into it. OH the spirit was there. I am telling you. THANK YOU for the balm you handed to my friends.


Corinne

.................................................................................

I also found this beautiful poem/post on Corrine's blog
Littlest Bird.




in the home where someone has passed away

after a long illness,

there is a blanket of peace.




it is made by the weight of an amazing life lived,

and by the strength of the people who

stood by bedsides

held hands

stroked foreheads

administered relief

pulled up blankets

taped cheerfully drawn pictures on the wall

told stories

and remembered.

remembered and remembered about life

before cancer.




hugs are tighter, then, in that home,

where the loved one is lying still on his bed,

his spirit released from the prison of his

ailing body.

it's as spiritual as the feeling in the temple, or the most

sacred place you can imagine.



feelings are raw but that rawness is absorbed

in a love that chimes with selflessness.

and when you look into the eyes of the woman who has lost

her companion of thirty-five years,

you KNOW

you KNOW

that God was watching over her

as she helped her husband

pass from this life

to the next

and that He will continue to be with her

as she waits to be with him

again.




....................................................................................................................


And finally I want to show you the 2nd magic quilt, thanks to April from Springrose Journals. She made a mini magic quilt for a young girl named Riley who was recently diagnosed with stage four spinal cancer. I really love this quilt because it is so happy. So very happy. And cheery. Springrose, did you put Mighty Man Adam's fuzzy blanket on the back?





Springrose! This whole design made my eyeballs completely sweaty! MAHALO Springrose! BIG HUGS! Look at me surrounded by Don and Stan and Lila and Mighty Man Adam. That's the closest I've ever felt to being queen for a day. ;)

Friday, October 8, 2010

Aloha Oe

Yesterday, October 7th, our first Magic Quilt recipient, Stan completed his journey here on earth and returned home.



The day before he passed Amanda sent me an email that poured chicken soup all over my soul. I printed it and shared with all of my kids before they went to bed. I have shared it below. When I awoke the next morning there was another email waiting for me from Amanda. This time telling me that Stan was done with his suffering.



I can't really describe how I feel to have been apart of this process in some small way. I feel completely honored that the Magic Quilt led me to Stan and Lila. They are two of the most beautiful people I have ever met.



Aloha Oe Stan, safe passage.




And please remember your promise to say hello to my dad for me.
...................................................................................................................................

Email from Amanda:





I just wanted to take a minute and share something with you. I had a prompting to stop in to see Stan and Lila today, then I ignored it. I drove right past their street and my chest felt like someone just sat on me and I felt as if I were nearly possessed, as I didn't feel like myself. I promptly made a u-turn at the very next light, just a few hundred yards past their street. I instantly felt calm and knew that I shouldn't have talked myself out of following that initial prompting.



When I knocked on the door, Lila greeted me with the most welcoming smile. She is so beautiful and sweet and precious and there are not enough adjectives to begin to describe how amazing she is. She explained that her sister came to stay with her and how grateful she was that she arrived on Monday because Stan fell Tuesday night and she could not get him up alone. She then asked me to go see Stan. I declined, the 4 kids were screaming in the car. She said, "Just go hold his hand." How could I refuse?



I knew immediately that things weren't good, I mean, we've known the cancer was terminal, we've known he would get to each of these stages, but reading it, thinking it, even hearing it doesn't prepare you for seeing it. I couldn't help the tears that filled my eyes and my heart wept, also. Lila stood over him so lovingly, smiling constantly and adoring another opportunity to gaze upon him. I called his name, placed my hand upon his hand and looked into his peaceful eyes.



He can no longer talk and it's been 3 or 4 days since he's had any type of nourishment. His time left here is short, the veil is certainly thin. However sad that reality may seem to us, he is between two worlds and has the comfort of sight beyond ours. He is okay, he is at peace. Stan and Lila's sons were planning to come in for the weekend, but Lila had encouraged them to change their plans as Stan may not make it to the weekend. Lila is doing better than I could ever hope to be in a situation such as hers. She continues to tell people how graceful Stan has gone through all of this, but really she has shown tremendous grace, as well. And the love she showers him with and the attention she pours into him allows him to be so graceful during this truly difficult time.



Let me step back a few paces to when Lila introduced me to her sister. She said, "This is Amanda, you know Amanda...." Her sister teared up and rushed to my side to hug me and through all the tears and arms she said, "Thank you." She was thanking me for the Magic Quilt project. The quilt has made a tremendous impact on this family. Lila went on to explain to me that Stan always has the quilt with him. When he was able to sit in his chair, the quilt came with him. When he went to bed, the quilt traveled there, too. I know the quilt is seeing the beginning of its innumerable days of comforting others. And as this first chapter of the quilt's life is coming to a close, I believe the second chapter may open while being wrapped around Lila's shoulders in the weeks to come. There is love in every square of fabric and blessings in every stitch of its magical seams. Once again, I cannot thank you enough for birthing this project and allowing so many of us to share in your dream of sending magical love around the world. I wish everyone could feel the magic quilt in action, it is a beautiful thing!



With Love,

Amanda